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Mum fighting time to find cure for her son
A HAMPSHIRE mum forced to watch every day as her son fights an incurable disease is preparing for her next mission to fund vital research that one day might be able to help him.
Sabrina Balram believed she had given birth to a bouncing, healthy baby boy, Sonny, but when he was just eight months old she was given the devastating news that he was suffering from a life-limiting condition that would change their lives forever.
The youngster was diagnosed with Duchenne muscular dystrophy, a horrific terminal muscle wasting condition that leaves many paralysed by their early teens and few living to see their 20s.
Every year an average of 100 young men will die of Duchenne and the same number will be diagnosed with the illness.
But determined not to be beaten by such a terrible diagnosis, Sabrina, from Woolston, has vowed to help raise funds for research into treatments and a potential cure that could one day treat her son, who is now six years old.
Having already completed the London Marathon, climbed Mount Snowdon and taken part in a 32-mile bike ride, to name just a few, the mum has now set her sights on doing the three peaks challenge in just 24 hours, with friends Jonathan Stuckey, Joe Lavery and Steve Hyatt.
All the money raised from the mammoth climb, on September 20, will go towards Action Duchenne which supports families affected by the condition as well as working in the labs to find that long-awaited cure.
Sabrina said: “I find it more and more difficult as my son gets older because the signs and symptoms of the condition are forever there.
“Sonny is able to run around now and he is a very cheeky, happy, playful and smart little boy, who I love so much, but it’s so sad because I know what will happen to my only child.”
To sponsor Sabrina visit justgiving.com/sabrina-balram1.
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