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Cicely’s battle for normal life
6:47pm Friday 20th September 2013 in News
“I JUST want to be like everyone else.”
Those are the words of Cicely Mathews who has made a film aimed at helping other young people like her who suffer from cystic fibrosis.
The 15-year-old Hampshire youngster suffers from the lifeshortening genetic condition which slowly destroys the lungs and digestive system.
Cicely, who lives at Awbridge, has made the short video film for the Cystic Fibrosis Trust.
She has had the condition since she was 15 months old.
“Living with cystic fibrosis is very frustrating, I just want to be like everyone else,” said Cicely, who has to endure daily medical treatments including taking drugs and using a nebuliser.
Cicely added: “Treatments stop me living a normal life but if I don’t want to do them, I know there will be consequences like my cough increasing and that’s why I have to do it.
“I just want to be a normal teen like my friends, but with new research happening every day, this is becoming more and more likely due to new and improved treatments which will dramatically decrease the time needed for things like physiotherapy and give me more time to study and spend time with friends.
“Without raising awareness and money this would not be possible and that’s why it’s so important to do it.”
Cicely has taken part in fundraisers for cystic fibrosis and has written her own blog.
Now she has made the video, which has been released by Cystic Fibrosis Trust and is funded by Jeans for Genes Day, which is today.
The video’s aims are to encourage other teenagers with CF to keeping taking their medication and give young people who don’t have it a better understanding of the condition.
Her mum Danae said: “For Cicely to keep well, the treatment is unforgiving. If she doesn’t do her treatment on a daily basis she ends up in hospital.
“Teenagers want to be teenagers and when they have CF the pressure to keep on top of their illness is constant.”
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