A YOUNGSTER from Hampshire who suffers from a debilitating muscle-wasting condition must wait has had to wait another day to hear if he will have access to a new drug.

Seven-year-old Jagger Curtis, from Romsey, may hear today if NHS England will provide the funding for him to begin a trial to slow down the effects of Duchenne muscular dystrophy.

The Saints' fan was one of several youngsters to deliver a letter to Prime Minister David Cameron pleading for the medication that will change his life.

His condition means he is unlikely to live beyond his 20s, but hopes that taking part in the trial of Translarna will allow him to use his legs and play football when he leaves Romsey Abbey Primary School.

Jagger and his parents, Jules Geary and James Curtis, had expected to hear about a final decision on whether to approve funding for a trial of Translarna earlier this week, but it has now been delayed.

James, 41, told the Daily Echo: “I don’t know what the delay is about but they now reckon we are going to hear about this today.”

Jules added: “There’s no inkling, whatsoever. [NHS England] have got to handle it properly, there’s plenty of other drugs that are being looked at, they’ve got to be responsible for what happens next.

“It’s really near, but then it’s just that little bit further. I haven’t been sleeping well at all for about a week. I’ve got another night of anguish. I’m going to have to find ways to take my mind off it.”

In the letter Jagger told Mr Cameron about his dreams of playing football when he leaves school.

He wrote: “I’m a massive Saints fan and I want to be playing football forever like my friends. Please can you help me, from Jagger.”

Romsey and Southampton North MP Caroline Nokes was with Jagger when the letter was presented.

She and several other MPs have been campaigning for the red tape on the drug to be dropped so that the children can get the treatment.