Six-year-old Kacey Smith to donate bone marrow to little sister Milly

Six-year-old to donate bone marrow to little sister

Six-year-old to donate bone marrow to little sister

First published in News Daily Echo: Photograph of the Author by , Crime Reporter

IT IS the ultimate gift that any sister can give – the gift of life.

Six-year-old Kacey Smith is going to become a bone marrow donor for her younger sister Milly in a bid to cure her of a rare immune disorder that makes even a play in the park or a swim in the sea potentially fatal.

Without it, four-year-old Milly, who suffers from chronic granulomatous disorder, would be unlikely to live past her teenage years.

Their parents, John and Theresa Smith, from New Milton, were devastated when Milly was diagnosed last October and discovered that any infection could be lifethreatening to the little girl.

However, just weeks later, tests to ensure her sister Kacey and one-year-old brother Brody, did not have the disease revealed that Kacey was the perfect match to save Milly’s life.

Theresa said: “We have told Kacey that she has the magic to make her sister better and save her life. It is a lot to take in for anyone, let alone a little girl, but although she is a bit wary of going into hospital she is very proud to be able to help her sister.

“We are blessed that Kacey can do this for Milly. Other families are forced to wait on the long waiting lists to find a match and my heart goes out to them.”

Milly was born with the disorder that means her body cannot fight against fungal bacteria, making her vulnerable to common infections such as a cold and leaving a simple cut open to blood poisoning.

It has meant that Milly cannot play near cut grass or dead leaves – particularly difficult when living in the New Forest – because if she breathes in the spores they could be potentially fatal.

A bone marrow transplant is the only cure for the disorder and although it will mean Milly enduring radiotherapy and chemotherapy to eradicate her immune system before she can receive Kacey’s bone marrow, followed by up to eight weeks in isolation, it will give her the chance to lead a normal life.

Theresa, who was forced to give up work as shop assistant to care for Milly, added: “It will be a tough year for Milly. I have my concerns because it will mean both my girls going into hospital but I know for Kacey the procedure is pretty simple and without it, Milly probably wouldn’t reach her 20s.”

Now Theresa and John, a painter and decorator, are on a fundraising mission to be able to take Milly on her dream holiday to Euro Disney – giving her something to look forward to once she has recovered from her bone marrow transplant.

Comments (7)

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5:29pm Fri 21 Sep 12

Dasal says...

Wow !!
You may have to peer through the smudges on this post.........tear stains !!

What a fantastic story, my best wishes for the whole family in their forthcoming journey.

Just about to visit the website now to do what I can.
Please others ...follow me !!!
Wow !! You may have to peer through the smudges on this post.........tear stains !! What a fantastic story, my best wishes for the whole family in their forthcoming journey. Just about to visit the website now to do what I can. Please others ...follow me !!! Dasal
  • Score: 0

5:57pm Fri 21 Sep 12

scilence says...

After you with the tissues.
After you with the tissues. scilence
  • Score: 0

8:13pm Fri 21 Sep 12

pastymanuk says...

Dasal wrote:
Wow !!
You may have to peer through the smudges on this post.........tear stains !!

What a fantastic story, my best wishes for the whole family in their forthcoming journey.

Just about to visit the website now to do what I can.
Please others ...follow me !!!
Hello, this is Milly's daddy, thank you for your kind words, Theresa and I are both touched by your words.

Can you please tell me if you were able to donate, if this was your intention? as have had a few teething problems with Milly's site,

thank you again,

John and Theresa Smith.
[quote][p][bold]Dasal[/bold] wrote: Wow !! You may have to peer through the smudges on this post.........tear stains !! What a fantastic story, my best wishes for the whole family in their forthcoming journey. Just about to visit the website now to do what I can. Please others ...follow me !!![/p][/quote]Hello, this is Milly's daddy, thank you for your kind words, Theresa and I are both touched by your words. Can you please tell me if you were able to donate, if this was your intention? as have had a few teething problems with Milly's site, thank you again, John and Theresa Smith. pastymanuk
  • Score: 0

7:55pm Sun 23 Sep 12

cliffwalker says...

I'm don't feel comfortable about persuading a child of 6 to undergo a surgical operation even in such a good cause.
I'm don't feel comfortable about persuading a child of 6 to undergo a surgical operation even in such a good cause. cliffwalker
  • Score: 0

2:13pm Wed 26 Sep 12

livinglife says...

@cliffwalker, I agree, as noble a cause as it is a 6 year old is not able to understand the magnitude of the decision or the effect it will have. I fail to believe that there were not other relatives that could have been considered, perhaps half-siblings? That said it is clear the decision has been made and I wish young Milly and Kacey all the best x
@cliffwalker, I agree, as noble a cause as it is a 6 year old is not able to understand the magnitude of the decision or the effect it will have. I fail to believe that there were not other relatives that could have been considered, perhaps half-siblings? That said it is clear the decision has been made and I wish young Milly and Kacey all the best x livinglife
  • Score: 0

4:20pm Wed 26 Sep 12

pastymanuk says...

I appreciate your views, Kacey will not be harmed in the long term at all, plus Kacey will undergo a full psychological assessment to make sure she is comfortable with the procedure and she is not being coerced into undergoing the straightforward and very very low risk operation. There were no other donors available close or half siblings and my husband and I could not donate as we are too old to donate to save our daughters life.
I appreciate your views, Kacey will not be harmed in the long term at all, plus Kacey will undergo a full psychological assessment to make sure she is comfortable with the procedure and she is not being coerced into undergoing the straightforward and very very low risk operation. There were no other donors available close or half siblings and my husband and I could not donate as we are too old to donate to save our daughters life. pastymanuk
  • Score: 0

9:39pm Fri 28 Sep 12

sophie294 says...

cliffwalker wrote:
I'm don't feel comfortable about persuading a child of 6 to undergo a surgical operation even in such a good cause.
I gave bone marrow to my brother when i was 6 and i think it is the best thing i have ever done. I don't think i could understand it if my parents didn't make me go through it after all it is an attempt to save a siblings life.
[quote][p][bold]cliffwalker[/bold] wrote: I'm don't feel comfortable about persuading a child of 6 to undergo a surgical operation even in such a good cause.[/p][/quote]I gave bone marrow to my brother when i was 6 and i think it is the best thing i have ever done. I don't think i could understand it if my parents didn't make me go through it after all it is an attempt to save a siblings life. sophie294
  • Score: 0

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