A SAINTS fan who suffers from a life-limiting muscle-wasting condition has to wait another day before a crucial decision on a breakthrough drug is announced.

Romsey lad Jagger Curtis is one of several children who hopes that funding will be provided by NHS England for him to begin a medication trial to slow down the effect of Duchenne muscular dystrophy.

Medical bosses are due to be deciding today (Tuesday) whether to approve funding on a trial for Translarna but an announcement is not expected to be made until tomorrow morning “at the earliest”.

It means that Jagger’s parents, Jules Geary and James Curtis, have another sleepless night ahead of them.

Jules said: “There’s no inkling, whatsoever. [NHS England] have got to handle it properly, there’s plenty of other drugs that are being looked at, they’ve got to be responsible for what happens next.

“It’s really near, but then it’s just that little bit further. I haven’t been sleeping well at all for about a week. I’ve got another night of anguish. I’m going to have to find ways to take my mind off it.”

Translarna was approved for use in the European Union in August 2014.

The Romsey Abbey Primary School pupil is unlikely to live beyond his 20s because of the syndrome, which will also mean he will lose the use of his legs in the coming years.

When that happens then Translarna won’t have any effect at all.

But if the seven-year old can get access to the drug soon he could still be able to play football when he leaves school.

Earlier this month he hand delivered a letter he had written to Prime Minister David Cameron at Downing Street.

He had hoped to meet Mr Cameron face-to-face but the Prime Minister had to fly to Brussels.

In the letter Jagger told Mr Cameron about his dreams of playing football when he leaves school.

He wrote: “I’m a massive Saints fan and I want to be playing football forever like my friends. Please can you help me, from Jagger.”

Romsey and Southampton North MP Caroline Nokes was with Jagger when the letter was presented.

She and several other MPs have been campaigning for the red tape on the drug to be dropped so that the children can get the treatment.

“It’s really important; for Jagger the clock is ticking. It’s crucial that Jagger gets this drug as soon as possible,” she said.