IT is the moment they have dreamed about for nearly four years.

Hampshire youngster Jagger Curtis and his family have been told when their son can finally start taking a breakthrough drug.

Only the results of a blood pressure test stands between the youngster from Romsey finally beginning treatment which could slow down the effects of his condition.

The young Saints fan suffers from a rare form of muscular dystrophy and his father James and mother Jules Geary have been campaigning campaign for more than three years for him to access a drug called Translarna.

Last night Ms Geary, 41, said Jagger, nine, is “within reach” of receiving the drug next month after their son yesterday underwent a series of tests to determine his suitability for the drug.

Because of the condition Duchenne Muscular Dystrophy, Jagger is not expected to live beyond his teens and be unable to walk past a certain age but the drug could slow down the effects.

In April, medical watchdog the National Institute for Clinical Excellence (NICE) recommended NHS funding for Translarna, the first drug addressing an underlying cause of the life-limiting muscle-wasting condition to be approved in the EU.

Specialists have said that Jagger is scheduled to start the treatment on September 8.

But first he must await the results of blood pressure tests carried out yesterday to ensure he is safe to take it.

The Managed Access Agreement (MAA) allows the £200,000 drug to be available on the NHS for a five-year period if the patient meets certain criteria –_ which Jagger does.

The decision follows the Romsey Abbey Primary School pupil and some of the other boys needing treatment for Duchenne Muscular Dystrophy visiting Downing Street to make a direct please to the then Prime Minister David Cameron.

Ms Geary told the EchoEcho said: “We have almost got it, it’s almost in reach. The last three years have been a rollercoaster but Jagger is an amazing child who won’t give up.”

Mr Curtis, 43, said: “We are nearly there. There’s still that little hurdle to get over and I won’t be content until we have the drug in our hands.”

Ms Geary thanked those offering “phenomenal” support to the family’s campaign – including Romsey and Southampton North MP Caroline Nokes adding: “I can’t thank her enough – she’s done so much for us.”

She also thanked Dr Marjorie Illingworth from Southampton General Hospital who has helped with his treatment.