CAMPAIGNING parents whose daughter died of a sudden heart condition are celebrating a major breakthrough after clinching a face-to-face meeting with the Prime Minister.

Graham and Anne Hunter will travel to Downing Street as part of their campaign calling for national screening for the devastating condition which claimed daughter Claire Reed’s life.

It comes nearly two years after the 22-year-old’s shock death from Sudden Adult Death Syndrome (SADS) while celebrating at a friend’s hen do in Taunton – just five months after marrying her husband Andy.

She was previously fit and healthy and showed no signs of the condition which claims the lives of 12 people under the age of 35 in Britain each week.

Now they will share their remarkable story with Prime Minister David Cameron and his wife Samantha, who have personally hailed their dedicated work as Community and Charity champions.

And it is a golden opportunity for them to demand SADS screening on the NHS and for defibrillators to be installed in public places including sporting and leisure venues by law.

Graham and Andy will attend a reception with Mr Cameron, while Anne and Claire’s older brother Peter are invited a separate one with Mrs Cameron later this month.

The dates cannot be disclosed due to security reasons.

Daily Echo:

Claire Reed

Their story will strike a chord with the Camerons whose disabled son Ivan died in 2009, aged six.

The Hunters will also echo calls he made to Chancellor George Osborne when he met residents in their home-town of Botley last month when Graham demanded for VAT on defibrillators to be slashed.

Graham, 61, from Salwey Road, hailed the invitation as a “real honour” and said: “We would have never thought in a million years we would be invited to something like this.

“We will be talking about the tsunami of emotions we have all felt and reiterate our campaigning.

“We always said we wanted to turn a negative to a positive and leave a legacy for Claire but we never thought we would raise so much and get this far.

“I know that she would be really chuffed to see this if she was still with us.”

Since Claire’s death the family have raised £41,000 for the Cardiac Risk in the Young (CRY) charity and are playing a key part in a review investigating into the benefits of SADS screening on the NHS.

They have installed defibrillators in public places in Hampshire and have organised SADS tests for 700 young people – with the next round taking place this weekend in Eastleigh’s Fleming Park Leisure Centre.

Andy has also launched a petition calling for screening to be debated in the House of Commons.