EDITOR'S CHOICE LATEST NEWS Search is on for the next Miss Southampton Boat Show FEATURES Was my husband's life only worth £275? BUSINESS BAA told sell three of seven UK airports SAINTS Poortvliet bolsters defence VOTE Following the Spanish air crash, are you more concerned about the safety of flying? Yes No GET OUR NEWS BY E-MAIL Just register

Most read Comments 1 Arrests after cyclist dies in bridge crash 2 Poortvliet bolsters defence 3 Steering the way to wedded bliss 4 TV chef was drinking before fatal smash 5 Man robbed of wallet in alleyway 6 Castle gets shot at former Amir Khan foe 7 Olympic gold medal for another Hampshire sailor 8 Don't panic, urges Svensson 9 Family grief-stricken after the murder of ‘happy and kind’ son 10 Eight-year-old gets A* maths GCSE Today | 7 Days 1 Davies completes move to Stoke 2 Young stars may leave to help balance the books 3 Mum punched in front of her kids 4 Cunard to come home to city port 5 Anger as planners pass £500m VT site scheme 6 Local businessman creates own biofuel 7 Jan seeks two signings for Saints 8 Olympic gold medal for another Hampshire sailor 9 350m container ship is docks’ biggest to date 10 Mum who plunged 100ft from tower block never got over daughter's death

ME (myalgic encephalomyelitis) is an illness that affects around 250,00 people in the UK, including children and teenagers.

Despite being recognised as a serious and disabling condition by the Department of Health, many people experience great difficulty when it comes to obtaining a diagnosis or help with management.

So to mark ME Awareness Month, The ME Association wants to hear from as many people as possible about their experiences - good or bad - of coping with ME.

To do this we have produced a questionnaire which asks about treatments that work, treatments that don't work, and what people want when it comes to GP and hospital based services.

We also want to build up the biggest ever picture of what happens when people are given cognitive behaviour therapy or graded exercise therapy - two controversial forms of treatment that have been recommended in a guideline produced by NICE.

We can then go back to the Department of Health with a really comprehensive nationwide picture of this illness, along with recommendations on how diagnosis and services can be improved.

If you have ME, or care for someone with ME, please try and fill in the questionnaire. An electronic version is available on the ME Association website at: meassociation.org.uk. A paper version will be available later from the ME Association.

NEIL RILEY, chairman, ME Association.

10:00am Wednesday 14th May 2008

Print

Email this