We'll walk down the aisle with Tarun, say parents Tracey Burrows and Joja Chungh

Daily Echo: Tarun Chungh Tarun Chungh

IT WAS a promise they made to their premature son as he lay in intensive care fighting for his life.

If Tarun Chungh pulled through and made it to his third birthday, his parents would get married and he, along with his twin brother and older sister would go down the aisle together.

Now, three years on, and against all the odds, Tracey Burrows and Joja Chungh are about to honour that promise they feared they would never get the chance to keep.

Because Tarun – who was born with a rare genetic condition that has seen him on the brink of death five times during in his short life – has fought on and kept his end of the bargain.

Not only has he defied the medics by surviving to his third birthday, in the last few weeks he has started taking his first steps – something which his mum and dad never thought they would see, meaning that he will be walking alongside his siblings down the aisle.

Tracey, 39, said: “When he was born we were told that he was not going to make it, so as we held a vigil at his bedside. We found ourselves talking about all sorts of things and told him that if he pulled through, his dad and I would get married when he was three.

“We told him that we would be the proudest parents in the world, that it would be a dream come true and so he must pull through. We never thought we would see the day but he is our miracle and in just a few weeks we are getting married.”

Born at just 32 weeks after a routine scan revealed only an emergency caesarean would save his life, doctors in Southampton were faced with a condition that they had never seen before.

Tests revealed that Tarun was suffering from Noonans Syndrome, a genetic disorder that causes abnormal development of many parts of the body, as well as a rare form of leukaemia, JMML, linked to Noonans.

Since then, Tarun, whose twin Kian is perfectly healthy, has spent most of his short life in hospital, undergoing numerous operations to keep him alive.

Unable to eat or drink, he is fed through tubes to ensure he gets what he needs to survive.

The family are forced to live every day as it comes, never knowing what each day will bring, but when Tarun reached his second birthday last year, Tracey knew she would have to get planning for the wedding they promised him.

Tracey, from Woolston, added: “It has not been plain sailing and Joja didn’t want to tempt fate by planning it, but here we are, just a few weeks away and I can’t believe it.”

On December 28, Tracey and Joja, 41, will tie the knot at the Grand Harbour Hotel Southampton, in front of 200 guests. And Tarun, to the amazement of his parents, will be walking down the aisle with his six-year-old sister Tia and Kian.

They will be walking down to Beyonce’s Ave Maria, a song that has got them through all the heartbreaking trips to hospital when they were told Tarun wouldn’t make it.

Tracey said: “It will be one of the most amazing days of our lives. To have all our children there together when we have been through so much will just mean the world to me.

“It is a miracle. I am going to be the proudest mum in the world; I just never thought I would see the day.

We just thank God every day that we wake up with him.”

Comments (1)

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3:58pm Mon 9 Dec 13

Beer Monster says...

What a nice story of a family pulling together and celebrating the courage of Tarun, good luck to you all.
What a nice story of a family pulling together and celebrating the courage of Tarun, good luck to you all. Beer Monster

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